Thursday, April 9, 2009

Another day i guess......




We found out last night that instead of going down her cmv infection count went up from 13000 to 20000 Dr law says that it doesn't mean that it is actually that high because of how they do the test but the guy that is like the lead infectious disease will be notified of the jump in the level and see what he has to say about it. With this jump it means that we will most likely be here for the full 2weeks of treatment instead of our hopes of getting out sooner. Dad will be leaving for home on the 16Th so after that i will be here alone just me and Shayla and hopefully not too much longer. Dr law seems to think we will be here longer then he is keeping anyone else just do to the fact that she was really sick before transplant and we are hoping to get the gj tube in at least before we leave which will be nice. That one is a day by day thing because of her liver she has lots of stomach muscle now and she is actually trying to turn over on to her left side now instead of just her right side which is really good. she is becoming such a smart little cookie. Now Shayla when she is sleeping usually sleeps with her mouth shut yesterday when she was sleeping i found her sleeping with her mouth opened it was soo cute. So of course i took pictures also they had us try this blow by mask to see if that would help her nose since it keeps drying out with the nasal cannula. Hopefully the rest of this week goes better then it has. thank you everyone for your continued support.
With love the wilson family

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