A good day

Shayla is continuing to progress she is up to three 3 hr brakes a day. She definitely knows when she wants that bi pap off of course if she had it her way she would just take everything off her face but she can't do that yet. today they did an upper GI on her just to look at her stomach and make sure that there is no scaring down that way do to her chest tubes that she has had in the past and the fact that her liver is big. Her liver has also started to shrink it isn't a huge difference but enough for me to be able to tell. They say the plan is still to get her g tube in on Monday through Ir cause that is where Dr law wants it done because he likes how they do them. The doctors are going to continue to discuss this through tomorrow just to make sure they are doing the right thing for her because they don't want to set us back with how good she is doing if after the g tube gets in she is still doing as good as she is right now we should be on the floor next week if not beginning of the following. They are also thinking that there is a chance that she will still need the bi pap when we go home so we will have to set everything up back home just on the off chance that we do need that she also might also need to be on oxygen when we go home as well allot of this is because of her scoliosis her left lung is restricted but oxygen and the bi pap at night is a whole lot better the a tube down her throat. Being here over this last year has been the worst thing ever but in some ways the best thing we have met a lot of great people like our friends Leah and her son Joshua and if this would have never happened we would have never had a chance to meet them or Mimi and her daughter Mia and Maddie and her mom Katie and even heather and her son Daniel all these people are heart moms and it is nice to have their support along the way because we always have are family there but in allot of ways it is hard for them to know exactly what we go through on a daily basis because they are not here like we are every day no matter what, yeah we take a day or something to do laundry and maby go shopping or something like that but you know that isn't a brake. once we go home i am really going to miss everyone that we met which there is plenty of them but in allot of ways i will be so relieved being home and able to get back to a semi normal life again with Shayla and her dad and just get to be a family. we will of course still have a nurse that comes in but she wont be in all the time and she will only be there for like an hour and yeah we will have doctor appointments up the ying yang but you know what I would take that over being stuck in a hospital. Thank you everyone for your support we really do appreciate it even if it doesn't always seem like it.

with love the Wilson family