Well today shayla wanted to be a burger and dropped her heart rate down to the 
50s twice they say that it is just because of one of her medications so they are cutting back on the dose and not giving her, her dose tonight. As of yesterday for the first year shayla has no iv medications or anything else going through her hickman this is definetly a first but it feels good just to be able to pick her up with out that mess plus everything else she still hooked up to monitors and feeds and of course her o2. Also at some point hopefully next week we will get her g tube put in which is a more permanent tube that they can put in instead of the one that is going down her nose now and it will be easier to give her meds and everything with the g tube there is just a couple of test that they thought they had gotten done that they hadn't yet so they want to get those down asap tomorrow they goiong to move her feeding tube back to her stomach and she how she handles that. they are also going to do an upper GI and if she pukes alot with the food being in her stomach then they are also going to do what they call a ph test to see how much acid splashes up and there is a possiblity that they will do a band around the top of her belly to stop it from happening or they will do GJ tube and that just bipasses the stomach. Well that is about it on what is going on with her.
50s twice they say that it is just because of one of her medications so they are cutting back on the dose and not giving her, her dose tonight. As of yesterday for the first year shayla has no iv medications or anything else going through her hickman this is definetly a first but it feels good just to be able to pick her up with out that mess plus everything else she still hooked up to monitors and feeds and of course her o2. Also at some point hopefully next week we will get her g tube put in which is a more permanent tube that they can put in instead of the one that is going down her nose now and it will be easier to give her meds and everything with the g tube there is just a couple of test that they thought they had gotten done that they hadn't yet so they want to get those down asap tomorrow they goiong to move her feeding tube back to her stomach and she how she handles that. they are also going to do an upper GI and if she pukes alot with the food being in her stomach then they are also going to do what they call a ph test to see how much acid splashes up and there is a possiblity that they will do a band around the top of her belly to stop it from happening or they will do GJ tube and that just bipasses the stomach. Well that is about it on what is going on with her. 
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